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My cancer journey update !!

8.32am

the past month has been crazy!!! My last blog was all about doing a bucket list and sticking to it. Well that hasn’t even been a possibility at all yet!!

So where to start is the thing!!!

    Three weeks ago we had a treatment plan, I was happy because for the first time I felt there was some sort of structure with my cancer treatment. I found out my brain tumour had grown to now 2cm – 2.5cm so my Dr decided to put me back on a chemo drug, I had a drug called kacitabine which consists of 5 tablets twice a day, plus I was still going for my herceptin drug intravenously every three weeks. Two days into the tablets they were cause me chest pains and such a sore throat.
  • I was asked to stop abs start them over 4times to see if it was a reaction to the tablets!!! ( of course it was) after a two week period of stopping and starting I had enough.
  • Next plan!!!

    So I Revisited the doctors again and he changed my plan again!!!

    A new tablet, this time only one a week and herceptin jab in the leg. Less time at hospital and less drugs, I felt good.

    That soon changed!!!

    Just a few days later I started to feel unwell, I couldn’t sleep on my head at night, if I layed on the pillow I would wake up with terrible heads aches, so bad that my sight was blurry when I woke up and had server migraines.

    I was taking pain killers throughout the day, through the night, it just wouldn’t budge.

    Then I started to get pressure head, the only way I can describe the feeling is I would stand up after sitting and it was like a start of a head rush, then it would travel to my ears and the only way I can describe that is the feeling of driving 70mph with a window open in your car, the throbbing sound not being able to hear well, then it would travel to my eyes like bad sinuses and throb and eventually ease off!!!

    That kept happening everytime I got up, or sat down to quick, even to the point of not moving anymore!!!

    Enough!!!

    It got to the point that on Friday last week I couldnt take anymore!!! I knew something wasn’t right. I decided to go hospital and get checked over!!

    They did an mri head scan and a mri spinal scan. During that week I lost function to my left foot so the doctors wanted to check my spine as well.

    After the results they have put me on a high dose of steroids as the tumour has grown more which had a lot of swelling all on my right side of my brain causing all these symptoms!!!

    If it doesn’t rain it pours!!!

    Waiting for the call!!!

    All day yesterday I was waiting for a call from my oncologist, it got to 5.30pm and I thought again there not gonna call!!! I was waiting on a discussion from Queens court London hospital what they think the best treatment to have will be.

    Finally they rang about 7pm and after looking at the scans they have decided to go ahead with hammer knife radiotherapy surgery!!!

    Gamner knife Radiopharapy Surgery

    It’s a great type of radiotherapy that targets the exact area of the tumour without affecting other parts of the brain.


    I’ve had gamer knife before and the first time felt scary!! Mainly because of the brace they bolt into your skull but it sounds worse than what it is!!

    This is what I’ll be going through again next week!!

    Straight after having the brace fitted!!

    How Gammer knife works!!

    So that’s my update for the past month!!! It’s been hard getting to write anything because of how the tumour is effecting my mind, concentration and everyday tasks!! But I will be posting my next treatment journey for you all to follow!!! Even though no matter what I’m going through there are so many in the same predicament, I’m just grateful there are still options for me.
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    F**k you Cancer !!!

    Missing our wedding already !!! 😡

    I can’t believe it’s already been 1 month since I became Mrs Scanlon.

    All my friends and family telling me to make sure I take it all in because it will be over in a blink of an eye and I was. But I did listen to them and I love that I remember so many fantastic things about that day.

    One thing I’m not enjoying is changing everything over to my surname !! WTF it takes soo long. I’ve only done two things.

    One thing I’m so happy about is our wedding video. It’s so beautiful and I couldn’t be happier.

    It captured all those memories. X

    Big C Update!

    I wanted to touch on an update on my diagnosis. So after the wedding a week later I went for an MRI scan and yes the Brain tumour has grown Again!!!!

    So currently I’m waiting for my doctor to let me know what will be the next step!!

    I was supposed to get a call last Friday as they had a meeting at queens court London but haven’t heard anything.

    Two things I’ve noticed about cancer docs and giving news!!! They always tell you the news on a friday, so you end up having a total utter shit weekend!!!!

    Then seem to take ages to let you know what’s going on at times!!!! What the hell!!!!

    anyway, at least I was told the okay to still have my chemo treatment. So friday i had my treatment again.

    My second home

    An update on the cancer part of my life will be posted soon as I know.

    So the past two weeks I’ve been super busy.

    I wanted to touch on the fact my beautiful caught Lilly is shaving all her hair off in support of people going through chemo at our local chemo ward.

    Lilly has been growing her haor for a whole year to brave the shave xxx

    to raise as much money she can to give them something they could appreciate, by hopefully raising enough to be able to get vouchers/days out/week end So they can spend quality time with there loved ones. Going through it myself I know that’s what counts when you feel like it’s constant appointments, treatment, scans and more.

    So Please help my daughter to reach her goal and donate below.

    Lilly’s fundraiser event

    We also will be putting on a fundraiser event which takes place at Dunstablians Rugby Club on the 25th August 2019

    There will be a car boot in the morning, pitch fees and all derails are below

    There will be a fundraiser evening held at the rugby club as well, details of the event to follow soon.

    Please feel free and we encourage you to do your own some sort of little sponsor or coffee morning events to support Lilly to help raise as much as we can.

    I’m such a proud mummy and I hope you all can make it xxxxx

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    Yet It Starts Again!!!

    So it’s starting again #fuckyoucancer

    So I had my head MRI scan done last Wednesday and on Friday I got a phone call (the no caller ID call) yes that’s the one, the one when you know it won’t be good !!!!

    Why do they do that????

    Anyway, I was told one of my tumours is growing again in my brain !!!

    So obviously I got really upset 😢 and angry 😡 at the world and everything. But I’m getting so used to the bad news which is so sad and no one should have to get used to bad news Ever!!!! That I wasn’t as bad as I was all the previous times.

    So the plan is my scans will go to the hospital in London tomorrow and they will get checked over and discussed what the plan will be. Either surgery or the gamma knife surgery again like I had last time.

    One thing I will say going through all this, is it makes you very aware of your body, Maybe to in-tune with your body, because if something doesn’t seem right I panic straight away, knowing it could be something else. I definitely need a copy strategy for hospital visits and treatment. Can anyone recommend anything??

    Having the treatment or going for scans I’m absolutely fine with, it seems to really affect me from the build-up, like waiting in the waiting room, or having to stay in the MRI machine for 1 and a half hours and not be able to just leave. I think the main cause is not going through with whatever I’m going through but the end result/outcome of it all which is constantly on my mind 24/7

    Does this affect anyone else????

    If so does anyone have any good coping strategies???? Please comment any of you do!!!

    So for the past week 4 days I’ve been deflated again, but I’m not letting the big C get the best of me or consume my day!!!

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    Cancer sucks !!!

    A memory !!

    Soo I woke up today and saw my timeline memories on Facebook. I realised it’s been two years since I had my lumpectomy and lymph nodes surgery.

    It’s crazy, when I look back I remember how I felt at that time. I felt in despair, I felt I was going to die, and in a panic.

    In this picture I had just got home a day after my operation, I had to wear those lovely socks for three days !!!

    As time goes on it makes you realise to relax a little bit about the situation. Nothing will happen in a instant but over time !!

    Since this picture I have had a whole set of chemotherapy treatment, and her2 drugs,

    I have to have full body MRI every 3 months to keep an eye on my progression. I have been treated for three brain tumours, and now have Head MRI’s every 4 months.

    I’ve been diagnosed with bone cancer as well and I’m still fighting 💪🏻💪🏻💪🏻💪🏻

    I’m currently on a treatment called katcyler and it has its horrible side effects.

    This picture below is me when I was preparing for my gamma knife surgery!!

    It looks worse than it feels !!

    I had to have the support brace put on when I had my treatment for my brain tumours. The is called Gammer knife radiotherapy surgery.

    This was me a week after the surgery 👍🏻👍🏻

    At the Ideal Christmas home show !!

    I guess what I’m trying to say today is no matter how much you go through, pick your self up, dust it off and carry on. You have each day to live for and enjoy each minute of it.

    There’s soo many, too many people going through the same thing I hope one day there’s a cure !!

    Sign up for race for life !!!

    I’m supporting race for life this year and walking it with my husband, friends and children, I hope who ever reads this will sign up and join us to raise money for cancer, we will be walking on the 7th July at stockwood park, Luton. Feel free to join us 👍🏻

    Click the link to sign up

    Race for life

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    How to put your own touch to your wedding!!!

    Good evening, so I just wanted to share with you what I did for my wedding regarding stationary, props and decorations.

      My wedding invitations

    I had to really look around to find something I could make because I wanted to give it a personal touch it so easy to just order your invites nowadays I didn’t want to do that. I wanted them to come from the heart.

    So I searched everywhere and found this on Pinterest

    You can either click on the Pinterest above and find it or click the link below👇

    https://www.downloadandprint.com/blog/diy-translucent-wedding-invitation-with-vintage-charm/

    Also here is the link to the video on how to make them. There is a variety of different types of invites to choose from, on this site.

    https://youtu.be/HIaUbeiHuoU

    I also wanted to make some flower pieces for our top table, so I brought all of the items in this picture from The range they looked stunning. I paid roughly to make one £35

    The bird cages were from B&m stores £10 each

    Our present/card table

    1. Card box – from Esty
    2. Love sign – from The range
    3. Flowers in vase and mirror – from The range
    4. Man and woman ornament – from The range
    5. Message in a bottle sign – from Ebay
    6. The Instagram sign – from The range

    As you can see I brought a lot of my props from the range, they have a huge variety of wedding bits and the prices affordable.

    Instead of a wedding guest book, I wanted to do something different, so I thought of this idea.

    I thought a message in a bottle was great so I made three bottle signs with 1 year / 3 years/ and 5 years, so on each wedding anniversary, we will break the glass and read the messages from our loved one.

    I thought it was. A great way to remember our wedding day and are- live it. x

    The wine holder was brought from eBay

    Here is something similar Wine rack from eBay

    Some more inspiration for you all is the step ladders they were made up of my newly husband and I and I wanted to honour my dad as he could be at our wedding as he has passed.

    All items again brought from the range.

    The sign was brought from eBay.

    Welcome banner!!!

    Table plan!!!!

    Both brought from Babyobadi online

    They are also on Facebook!!

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    Miss tansley to Mrs Scanlon

    • After all the stress 18months of wedding organising, I finally got married.

    It was such an amazing day, from start to finish.

    The venue we choose was Horwood estate in Milton Keynes. Horwood house

    It was such a beautiful venue. The staff was amazing, so we close to make a full weekend of it.

    It was the first venue we looked at and we knew straight away it was the one. I would definitely recommend this venue as it comes with great packages, which includes the cake, DJ, draping, centrepieces, and flowers.

    If your looking for some inspiration here’s links to all our suppliers we used.

    1. The flowers – – The flower company in Bletchley Milton Keynes

    2. The cake – Bakerman in Harlington

    I had two dresses for my wedding, which I’m now so glad I did. It was so hot, (I think May is a great month to get married) that I changed into a more relaxed flowing dress for the afternoon evening. I got married in the big princess dress and felt a million pounds.

    3. Princess dress- more Lee from Ivory and lace

    Toddington.

    4. My 2nd dress from Web 2 be Milton Keynes

    To leave it for today I will finally post a beautiful picture of my children, they were so well behaved on the wedding day and the venue was very family oriented and they didn’t mind the children enjoying themselves.

    03AE483C-0D53-4375-ADBC-BDDE74BF14E1.jpeg

     

    I will blog again this week all the decorations I made and where I brought them from for inspiration for any couple who likes how we did our wedding.

    So that’s my first ever blogging post and I really do hope it had help any bride or groom out there for inspiration for your wedding.

    If you live in the area please visit the venue, it really is worth it.

    feel free to comment xx